Edit 2: We are not the people in those annoying Advil pain commercials– those who just need some pain relief for seven hours to keep on or finish their biking. We are the people who are more often than not in too much pain to brush our hair or wash the dishes, and to who the thought of buying groceries is about as exhausting as getting out of bed. (It would be a miracle to me, and I’m guessing most people with chronic illness, I speak from experience here, saying, a miracle– to us as those who experience this, if it were to be one of those days where I was great enough to bike and just need an “advil” like the commercial, or were—by george- on a biking streak-…). When I i first got sick, I could barely get out of bed. In time, I could take on one task a day– at the beginning, very small, and in time, the size of the task grew- sometimes, it threw me into a flare, just leaving the house, but I never stopped. I would go through this vicious cycle of flare and then plans and then flare and then making plans only to understand that there is A) nothing I can do to stop this and B) I had to listen to my body if I wanted things to improve. If I felt tired at a friend’s one night, I would have to leave early and rest for a day or so. That meant putting aside my type A personality and taking on nothing, or barely anything, so that I could recharge for the next round, like a boxer. Over the years, my chronic illness stamina somewhat improved- and also, didn’t. It came and went as my illness ebbed and flowed. But I learned from these times— as crappy or sometimes boring as they were– and now, when they come, I know how to handle them.
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