Age 60, Montefalcone Appennino, ITA
Best Migraine Friend: Heat
Weirdest Migraine Symptom: Total numbness
Most Predictable Trigger: Lack of sleep
Most Useless Treatment Tried: Topamax
Most Amusing Pain Distraction: Foot massage
How and when did you first get diagnosed with Migraine? Any specific type?
About 1997. I had been suffering from chronic headaches for years. They were probably Cluster headaches. I started getting classic migraines about 1997. At first, they were infrequent. Now they come like clockwork, every 36 hours, and, in between, I have a constant dull headache.
What lifestyle changes have you made to help prevent Migraine attacks?
I thought that coffee, ginger or chocolate might be triggers, but none of these things seem to affect my migraines. I try to get regular sleep and address my migraines as soon as they start, but if I get a new one within just a few hours of my previous one, I don’t want to over medicate.
However, to be honest, I don’t seem to have cracked the lifestyle code for reducing migraines.
What was the turning point in your Migraine Journey?
No turning point, just a progressive journey from a few times a month to regular, chronic migraines, about every 36 hours, with constant pain in between. The migraines now control my life.
Who has been the biggest help to you on your Migraine Journey, and how?
The only thing that has helped is triptans. I have tried beta blockers, anti-seizure medication and natural medications. I have attempted acupuncture and some holistic approaches, and they were all ineffective.
What is the most surprising thing you have learned about Migraine on your Journey?
How many other people suffer from them and how little the medical community can do for us chronic migraine sufferers. The advice is “pain management” which means “deal with it.”
What’s your advice to someone else living with Migraine?
I have no advice as I can’t know any migraine sufferers pattern. It’s a bleak and lonely Pluto of a planet, being a migraine sufferer, so, I guess the best thing is to just stay as positive as possible, get any possible pain relief you can and hope that someday there is something for those of us with intractable chronic migraines.
What’s the next step on your Migraine Journey?
Considering a headache clinic but my internet reading says they will recommend treatments that I have already tried.
Helpful Resources from this Journey
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